This Sunday 28th January marks the first World Lewy Body Day, a new awareness day that aims to shine a light on ‘the most common form of dementia you’ve never heard of’; Lewy body dementia (LBD).

In honour of the new international awareness day — which is also the birthday of Dr Frederic Henry Lewy (1885-1950), a German-born American neurologist who discovered Lewy bodies — an event is being held in Newcastle to allow patients, carers, charities, medical professionals and families affected by LBD to come together and listen to world leading experts share insights on this major neurocognitive disorder.

Speakers will share new information on LBD, and updates on current research, while guests will be invited to ask questions to the panel of experts, and share learnings and experiences.

Research shows that around 15% of all dementia cases in the UK are Lewy body dementia, making it the third most common form of dementia after Alzheimers and Vascular Dementia. In the UK, it affects an estimated 100,000 people.

Lewy body dementia is a type of dementia affecting the brain that’s caused by abnormal deposits of a protein called alpha-synuclein in the brain cells. These deposits are called Lewy bodies. They interfere with the normal functioning of the brain regions involved in thinking, memory, movement, and mood.

Some of the common symptoms of Lewy body dementia are visual hallucinations, movement disorders, poor regulation of body functions, cognitive problems, and issues with understanding, thinking, memory, and judgement.

Details of the event:

Sunday 28 January 2024, 2-5pm
The Catalyst
Helix Science Centre
Presentations about Lewy body dementia and its connection to Newcastle followed by a tea party in honour of Dr Lewy.
Speakers include:
  • Dr Lynne Corner – Director of Engagement, Faculty of Medical Sciences, Newcastle University and Director of Voice UK
  • Dr Paul Donaghy – MRC Clinician Scientist Fellow, Newcastle University and Consultant Old Age Psychiatrist, Gateshead Health NHS Foundation Trust
  • Dr Daniel Erskine – Senior Lecturer in Neurodegenerative Pathology, Newcastle University
  • Dr Alison Killen – Health Psychologist & NIHR Newcastle Biomedical Research Centre and patient and public involvement and engagement facilitator for dementia and neurodegeneration
  • Dr Marzena Kursawa-Akanbi – Senior Research Associate at Newcastle University and Chief Scientific Officer at ESP Diagnostics
  • Dr John-Paul Taylor – Professor of Translational Dementia Research at Newcastle University and Honorary Consultant at Cumbria Northumbria Tyne and Wear NHS Foundation Trust
  • Dr Lauren Walker – Alzheimer’s Research UK Fellow
  • Dr Alison Yarnall – Professor of Geriatric Medicine and Honorary Consultant in Older People’s Medicine
  • Ashley Bayston JP,BA,LLB, FRSA – Founder and Chair of the Trustees, the Lewy Body Society and Founder of Lewy Body International

You can register for the free event here.


Learn more about Lewy body dementia

Lewy body dementia is sometimes referred to as Dementia with Lewy bodies (DLB), but there’s a distinction;  LBD is a broader term encompassing both Dementia with Lewy Bodies and Parkinson’s disease dementia, while DLB refers to the single brain disorder.  

Listen to our ‘Living with Lewy’ podcast

Listen to ITN Business’ Living with Lewy podcast to learn more about the disorder. Hosted by Lewy Body Society (LBS) Founder and Chair Ashley Bayston, it features people living with Lewy body dementia, carers and clinicians, academics researching the condition, and LBS CEO Jacqui Cannon.