There are over 7,000 identified rare diseases, some so rare they only affect a few people. Collectively however, they are common, affecting 3.5 million people in the UK at some point in their lives, that is 1 in 17.
But beyond these statistics are the real lives; the children, the men, the women living with these rare conditions day to day. And we want to tell those stories. In ‘Rare Conditions: The Stories Behind the Stats’ we will meet patients and their families, health professionals and experts in the field, all to help raise awareness of the realities of living with a rare condition and showcase the work being done to help improve data sharing, diagnosis and treatments.
There are opportunities for leading companies to be featured in the programme and spearhead their own news items. We’re looking for organisations at the forefront of developments to take part and share their story. If this seems relevant to your work in the industry, then please contact Georgia Gerstein.